Update: To keep myself accountable, donations to both ALS Association (for the Ice Bucket Challenge) AND to the American Cancer Society (in memory of my father, Philip Ramsey) have been submitted.
Yesterday (August 23), I was challenged by my mother-in-law to take the ALS #icebucketchallenge. Today, I accepted the challenge and, of course, recorded the video to document the event. However, you’ll have to wait for that.
What is ALS?
ALS, or Amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that impacts nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body – the drivers of the body if you will. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost, often leading to victims becoming partially or completely paralyzed. ALS is not a contagious disease and knows no racial or socioeconomic boundaries – affecting approximately 5,500 Americans annually. (Source: ALS Association)
This is where I get frustrated.
The piece that is missing from most ice bucket challenge videos and/or posts is the paragraph above. I hate to say it, but there is a lack of education throughout the Ice Bucket Challenge on what ALS actually is and how it affects its victims. This is what people NEED to know. Now, sure – there have been some great response videos out there – Patrick Stewart, Benedict Cumberbatch, and so on. However, just as much fun as it is to watch others, it is important to know what it is you’re fighting against.
What is the Ice Bucket Challenge?
That’s a really good question. The simple answer, as best I can tell, is:
- Someone nominates you for the challenge
- You accept the challenge
- You nominate others for the challenge
- Douse yourself with a bucket of ice water
- Remind your nominees that they have 24-hours to complete the challenge and/or donate.
At first, I thought it was a novel way to simply engage and challenge one another. As the movement grew, it became slightly annoying, but then it also became somewhat entertaining. I’ve seen videos posted by celebrities, athletes, and even a good number of my dear friends. Of course, at a certain point, it became clear that eventually the nomination would be knocking on my door as well.
Some of my friends and I have had a number of discussions on this concept. Would we accept the challenge if nominated? Why or why not? Why has this taken off and become such a massive movement? Is it legit or just a fad? These are just a few of the questions we’ve pondered. To be honest, I had absolutely no intention of ever accepting the ice bucket part of the challenge. But, then again, I’m occasionally a proud and challenge-accepting person. Additionally, and probably more important, I see myself as something of a philanthropist. Maybe not the T.Boone Pickens (Oklahoma State) or Bob Sebo (BGSU) kind of philanthropist, but a philanthropist all the same.
The idea of giving back isn’t about who gives the most or how often they give. It’s about giving back – period. You don’t have to be the person who donates a million dollars to an institution in order to have an impact. An individual should give when they are able to so and to those organizations or causes to which they have a connection. Even the smallest gift can make a difference.
My Response & Challenge
I’m well aware that to someone out there, my actions of accepting the challenge doesn’t necessarily line up with the words here. I’m okay with that because I know what I’m supporting and honestly, it was a bit of fun in the process.
SO, with all of that out of the way and in the spirit of giving, I have accepted the #icebucketchallenge from my mother-in-law and will be donating to the ALS Association as well as to the American Cancer Society. I have nominated my wife’s aunt, uncle, and younger cousin to take on the challenge as well.
To everyone else: I challenge you to go out and find a cause that interests you and support it in whatever way you are able – financially or otherwise.
Until next time…